Ari's Bathroom
Ari's Bathroom Renovation
Ari is 9, going on 10 in April and has a smile that lights up any room. He was just 22 months old when he was diagnosed with the degenerative muscle-wasting condition, congenital muscular dystrophy, LMNA gene mutation. Ari has a particularly rare form of the condition, putting him among just 50 cases ever recorded worldwide. He has never walked, but zooms around in an electric wheelchair.
Ari had to undergo a barrage of genetic tests when they realised he was not meeting the developmental milestones expected for his age and was originally told he had Spinal Muscular Atrophy, as the markers for Muscular Dystrophy were too low. 6 weeks after genetic testing was run, it was confined it was CMD.
While Ari needs a lot of help for everyday activities, including showering, toileting, changing, feeding and turning in bed at night, he does not let the severity of the condition confine him!
Ari has weekly therapy through Ability Centre WA (Physio and OT) and various other appointments through PCH for speech, swallowing, heart and lung monitoring and general Neurology.
Ari has a bright, sassy, and hilarious personality and lots of friends who he enjoys playing online games with.
As he continues to grow, getting him in and out of the shower is becoming more dangerous and we are looking to have this modified for a safer experience for both Ari and his family caring for him.
Let's come together to give Ari the safety and independence he deserves.
Gallery
22/05/2025
The date funded
12
The number of donations
A word from the family
To Steve and his team at the Build Now Foundation, we are incredibly grateful for the life changing support they have given our family. Thanks to their generosity and hard work, our son Ari now has a new, accessible bathroom that truly meets his needs.
Before this, everyday tasks like showering and using the bathroom were not only difficult, but also unsafe, both for Ari and for us as his caregivers. The new bathroom has brought such a sense of relief. It's thoughtfully designed, easy to use, and has made a world of difference to Ari's comfort, dignity, and independence.
This isn't just a bathroom, it's peace of mind. It's safety. It's one less worry in our day, and that means more time to focus on what matters most, Ari's happiness and wellbeing!
Thank you Build Now Foundation, for your compassion, your dedication, and for genuinely changing lives. You and all the donors have made an incredible impact on our family, and we will be forever grateful.
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